Pyoderma Gangrenosum is a very rare skin condition that is not well known and not well understood. People can have the ailment for a few weeks or even years. There is almost no information on how to go about your life while suffering this condition.
Using a little photoshop type magic I have isolated the areas that are still ulcerated. Everything else is healed scar tissue. This is really no pain anymore but it does sting during a shower.
Funny that someone from the diet/fashion/home decorating side of the blog world would find herself here but I still google PG blogs and yours looked a little lonely. I had peristomal (Crohn's) PG for 10 years and the surgery to repair an incarcerated hernia removed the offending intestine and the PG disappeared. Who knew? I alluded to this vaguely and cryptically on my own blog this evening. The gory details would scare the straights. If you have a chance, read "Dark Remedy: the impact of thalidomide and its revival as a vital medicine" By Trent D. Stephens, Rock Brynner. Rock Brynner had PG. He's the son of Yul Brynner. I got my Dr. to write for it but it didn't work for me. Others have had success and it's used for some of the leukemias.
Anyway, I'll follow your progress and please know that at least one reader knows exactly how brutal this disease is.
Funny that someone from the diet/fashion/home decorating side of the blog world would find herself here but I still google PG blogs and yours looked a little lonely. I had peristomal (Crohn's) PG for 10 years and the surgery to repair an incarcerated hernia removed the offending intestine and the PG disappeared. Who knew? I alluded to this vaguely and cryptically on my own blog this evening. The gory details would scare the straights. If you have a chance, read "Dark Remedy: the impact of thalidomide and its revival as a vital medicine"
ReplyDeleteBy Trent D. Stephens, Rock Brynner. Rock Brynner had PG. He's the son of Yul Brynner. I got my Dr. to write for it but it didn't work for me. Others have had success and it's used for some of the leukemias.
Anyway, I'll follow your progress and please know that at least one reader knows exactly how brutal this disease is.