After I shower, I keep the wound covered with a Telfa and some gauze. Also evident is the edema that has returned to a small degree. The discoloration is actually scar tissue.
Pyoderma Gangrenosum is a very rare skin condition that is not well known and not well understood. People can have the ailment for a few weeks or even years. There is almost no information on how to go about your life while suffering this condition.
Thursday, November 18, 2010
Ouch
Although my ulcer appears more 'clean' than it has in the past, the actual pain level has been raised. I have been averaging one pill for pain a day, something I have not needed to do for over a year.
Sunday, November 14, 2010
3mm deep
I had a conversation with the doc from Boston. It seems what I need to get done can be completed here in NYC. He has since spoken to my doctors (dermatologist and oncologist) and everybody seems to be on the same page.
Whenever I need to get a refill on a prescription from my dermatologist, I have to go and get my situation reviewed. This includes him saying 'its getting better' or 'its getting worse', a swab of the ulcer to check for infection(s), a measurement and my blood pressure checked. As the pic illustrates, my ulcer hasn't expanded much over the last few months but it has 'deepened'. The pic does a lousy job showing the ulcer's depth. The nurse said it was '3 millimeters deep'. I can't imagine it was too accurate because of the method employed but I can say that at 3mm or whatever, it fuggin hurts. I have some pain pills that i take from time to time just to deal with it. It feels like a super heated wire wrapped around my ankle or a chunk of glass under the skin. When it hurts really bad i can't get anything done. So, i just pop a pill and wait for it to 'go away'.
The new meds that I am supposed to take promise to heal up this leg and allow me to get off the prednisone. We shall see..
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