Pyoderma Gangrenosum is a very rare skin condition that is not well known and not well understood. People can have the ailment for a few weeks or even years. There is almost no information on how to go about your life while suffering this condition.
Saturday, April 21, 2012
New to the scene.
Considering the large amount of steroids I'm taking every day its amazing I managed to have a new flare up just below my knee. This area started to flare up about six weeks ago but my dermatologist hit it with a needle before it could become anything serious. So, I thought. It's come back. And boy was it fast. It went from small purple bump to actual hole in about three days. This pic was taken prior to going back to the dermatologist for additional shots.
I hate having to deal with this Pyoderma bullshit. One of the few things I'm content about is that everything is located in one area, my leg. This would suck if it was on my face or my privates. How would one live a normal life with no skin on their face?
Saturday, April 7, 2012
Well huh..
The dermatologist was surprised by how much the ulcer has healed over the last month. It all looks the same to me but there seems to have been some real progress. The increase in the Prednisone might be the reason. Its slow going. The only thing I'm doing different lately is soaking my leg in the tub for about 30min a few times a week. I have spent so much time avoiding water and contact in general on the ulcer It's kinda' odd having it submerged in water. It feels good, no pain. I just drizzle on some Hibiclens and read while my leg soaks. The goal is to just help clean up the ulcer in general. I am always making the effort to keep things clean and dry.
My apt bathroom is too small for a Jacuzzi bath but it would be great in a situation like this.
Monday, April 2, 2012
Tendersorb
The leg pad that I'm using is made by Kendall, a 5"x9" variation of the Tendersorb. These things work really well. I call these my "leg diapers". A few pieces of tape and a fresh pad takes about two minutes to change up. If this is something you might need you should get them online. I pay about $8 for a box of 36. A heck of a deal. My local NYC store would probably want $25 for the same thing, so shop around.
Exudate
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